If you have Medullary Sponge Kidney and symptoms that
your doctors don’t believe or can’t explain, you are in the
Many Medullary Sponge Kidney patients have been made to
feel crazy because they manifest symptoms that are not
described in the medical literature. Currently, MSK is
frequently described by doctors as a disorder that has few if any
symptoms. Patients are typically told that beyond passing more
kidney stones than the average person, MSK is a non-issue.
Based on our research into 76 symptomatic MSK patients, complaints of
chronic pain, ache, fatigue/exhaustion and insomnia are common to at least
82% and there is no explanation for these symptoms.
In an effort to bring the truth about this disease to the medical masses, we
contacted Professor Giovanni Gambaro, who is one of the world’s leading
MSK researchers. He is more than a little intrigued by our findings and has
now completed the initial stages of ground breaking research into
symptomatic MSK patients. This study has been approved by the Ethical
Committee of the Catholic University of the Sacred Heart, Rome, Italy.
Approximately 90 symptomatic MSK patients participated in his pain and
fatigue survey. He is now crunching the numbers and preparing to present
his findings at the world’s largest international conference for Nephrologists
and Urologists later this year. Additionally, his results will be used to prepare
new scientific articles and papers that will inform and educate the medical
professionals who treat MSK. There is light at the end of the tunnel now and
soon, medical professionals will better understand this condition.
New Medullary Sponge Kidney Research!
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