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Welcome to the MSK Online Project!
If you have Medullary Sponge Kidney and symptoms that your doctors don’t believe or can’t explain, you are in the right place!  Many Medullary Sponge Kidney patients have been made to feel crazy because they manifest symptoms that are not described in the medical literature. Currently, MSK is frequently described by doctors as a disorder that has few if any symptoms. Patients are typically told that beyond passing more kidney stones than the average person, MSK is a non-issue.
Based on our research into 76 symptomatic MSK patients, complaints of chronic pain, ache, fatigue/exhaustion and insomnia are common to at least 82% and there is no explanation for these symptoms. In an effort to bring the truth about this disease to the medical masses, we contacted Professor Giovanni Gambaro, who is one of the world’s leading MSK researchers. He is more than a little intrigued by our findings and has now completed the initial stages of ground breaking research into symptomatic MSK patients. This study has been approved by the Ethical Committee of the Catholic University of the Sacred Heart, Rome, Italy.  Approximately 90 symptomatic MSK patients participated in his pain and fatigue survey. He is now crunching the numbers and preparing to present his findings at the world’s largest international conference for Nephrologists and Urologists later this year. Additionally, his results will be used to prepare new scientific articles and papers that will inform and educate the medical professionals who treat MSK. There is light at the end of the tunnel now and soon, medical professionals will better understand this condition.
New Medullary Sponge Kidney Research!
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